World Rare Diseases Day
February 28 marks World Rare Diseases Day. At the Paley European Institute, we stand in solidarity with all those struggling with these diseases and aim to raise public awareness of them.
Multiple cartilage and bone outgrowth syndrome (MHE)
We invite you to read a short interview with our doctors, in which they introduce you to one of the rare diseases - multiple cartilaginous outgrowth syndrome (MHE). From the interview you will learn what MHE sufferers have to deal with and what the treatment methods are.
We also encourage you to watch the episode "Fridays with Feldman , " in which prominent rare disease specialist David S. Feldman, MD, discusses the extremely interesting topic of MHE treatment in adults. The video is available with subtitles in Polish.
See other entries
June 18, 2026
Clubfoot isn't the end of the world
Clubfoot is a congenital defect that is present at birth. It is characterized by a specific foot alignment consisting of four elements: plantar flexion, heel varus, cavus deformity, and forefoot adduction. A foot deformed in this way resembles a golf club in shape, hence the English name for the condition, “clubfoot.” In Poland, this condition affects approximately 1 in 1,000 newborns. As Dr. Kapiński explains, the key […]
June 18, 2026
Monika's Story: How Osseointegration Restored Her Freedom After 36 Years of Living with an Amputation
Monika has been living with an amputated leg for 36 years. Over the past 15 years, she has struggled with increasing difficulties related to her socket prosthesis, which at one point brought her to the brink of deciding to switch to a wheelchair. Her story is a journey toward osseointegration, an innovative method involving the implantation of a prosthesis directly into the bone, which eliminates the need for […]
June 18, 2026
The Process of Obtaining a Disability Determination for a Child, Step by Step
A diagnosis of a disability in a child is an enormous emotional challenge for parents. Shortly thereafter, however, another equally difficult task arises: navigating the maze of procedures and bureaucracy. Natalia Gos, a physician assistant at the Paley European Institute who has been helping families through this process for years, shares practical insights on how to effectively obtain the necessary documents and support […]