World Rare Diseases Day
February 28 marks World Rare Diseases Day. At the Paley European Institute, we stand in solidarity with all those struggling with these diseases and aim to raise public awareness of them.
Multiple cartilage and bone outgrowth syndrome (MHE)
We invite you to read a short interview with our doctors, in which they introduce you to one of the rare diseases - multiple cartilaginous outgrowth syndrome (MHE). From the interview you will learn what MHE sufferers have to deal with and what the treatment methods are.
We also encourage you to watch the episode "Fridays with Feldman , " in which prominent rare disease specialist David S. Feldman, MD, discusses the extremely interesting topic of MHE treatment in adults. The video is available with subtitles in Polish.
See other entries
August 18, 2026
Rehabilitation After SEMLS Surgery—What Can the Child Expect in the Year Following the Procedure?
What does rehabilitation look like after orthopedic surgery for a child? SEMLS (Single-Event Multilevel Surgery) allows for the simultaneous correction of several orthopedic problems in children with neurological disorders, primarily cerebral palsy. The surgery itself, however, is only one stage of treatment. Equally important is a properly planned rehabilitation program following SEMLS surgery, which helps the child regain mobility and learn […]
August 18, 2026
Home Care After a Child's Orthopedic Surgery – A Practical Guide for Parents
A child’s return home after orthopedic surgery is an important stage of treatment. This is when parents take on a large part of the daily care—helping with mobility, personal care, administering medications, and following specialists’ recommendations. Home care following a child’s orthopedic surgery requires proper preparation, as the first few weeks after the procedure may look completely different from the family’s previous daily routine. […]
July 16, 2026
What is SEMLS surgery, and who needs it?
What is SEMLS surgery? Children with neurological conditions, such as cerebral palsy (CP), often struggle with muscle tone disorders, contractures, and musculoskeletal deformities, which over time can affect their mobility and independence. In such cases, symptomatic treatment alone may not be sufficient—a comprehensive approach is necessary that takes into account both the functioning […]