Maciej Pelc on bike to Lisbon to raise funds for brother's surgery - Paley European Institute expert comments for TVN Facts

Maciej Pelc on a bike to Lisbon

Szymon Pelc suffers from congenital adiposity, muscle atrophy of the left leg and buttock caused by neurofibromatosis, and needs expensive surgery. That's why his brother Maciej didn't hesitate for a moment and decided to undertake another, even more ambitious expedition. This time he plans to bike the route from Wroclaw to Lisbon to raise funds for his brother's surgery. Material about Maciej Pelc was published by TVN Fakty TVN, and an expert from the Paley European Institute comments and explains - neurofibromatosis - what it is, how common it is, and how the ailment is treated.

? Szymon Pelc suffers from congenital adiposity and muscle atrophy of the left leg and buttock caused by neurofibromatosis. In the TVN Facts report, Paley European Institute medical director Dr. Tomasz Albrewczynski stressed the rarity and complexity of the disease, reporting that it occurs at a rate of one in 50,000 births. Dr. Albrewczynski also expressed hope that with proper medical care, Simon will be able to stand on his own.

Maciej Pelc, despite his lack of preparation, took on this unique challenge to help his brother. His determination and dedication are an inspiration to us all. The Paley European Institute continues its mission to provide the highest quality medical care to patients throughout Europe who need specialized treatment. We have proven time and again that we are a source of hope and ultimate salvation for Patients who require the highest level of specialized care.

? We are proud to be a part of this story and support Szymon Pelc in his fight for health and a better life. ?

? Paley European Institute is a leading medical center specializing in the treatment of complex and rare orthopedic and neurological cases. Our goal is to provide patients with the highest level of care and support, enabling them to return to fitness and improve their quality of life. ?

Neurofibromatosis, adiposity and muscle atrophy

Szymon Pelc has been struggling since birth with an extremely rare disease that occurs at a frequency of 1 in 50,000 births - neurofibromatosis. Symptoms of this genetic disease include skin lesions, skeletal deformities (dysplasias and pseudo joints), headaches, hypertension, and even vision complaints (strabismus) or behavioral and developmental disorders. Neurofibromatosis is a treatment based on nullifying bothersome symptoms and monitoring changes in the patient's condition. Simon has regular follow-up appointments with various specialists, including a dermatologist, neurologist and orthopedist, among others. Each doctor focuses on the relevant aspect of the disease, tailoring treatment to the patient's current needs.

Cooperation with a physiotherapist is crucial for Simon. Regular physiotherapy sessions help him maintain joint mobility, strengthen muscles and prevent further deformities. Muscular atrophy disease also increases the risk of scoliosis and other spinal abnormalities, which requires extra attention and specialized interventions.

Paley European Institute expert comments on TVN Facts footage

The Paley European Institute reports a mention in a recent TVN Facts report of an unusual initiative. Maciej Pelc cycled from Wroclaw to Lisbon to raise funds for an operation for his older brother, Szymon.
Szymon Pelc suffers from congenital adiposity and muscle atrophy in his left leg and buttock caused by neurofibromatosis. In the TVN Facts report, Paley European Institute medical director Dr. Tomasz Albrewczynski emphasized the rarity and complexity of the disease, reporting that it occurs with a frequency of one in 50,000 births. Dr. Albrewczynski also expressed hope that with proper medical care, Simon will be able to stand on his own.
Maciej Pelc, despite his lack of preparation, took on this unique challenge to help his brother. His determination and dedication are an inspiration to us all. We are proud to be part of this story and to support Szymon Pelc in his fight for health and a better life.

Paley European Institute - a pioneering approach to orthopedic and neurological treatment

Paley European Institute

is a leading medical center specializing in the treatment of complex and rare orthopedic and neurological cases . Our goal is to provide patients with the highest level of care and support, enabling them to return to fitness and improve their quality of life. We help patients suffering not only from muscular dystrophy, but also from a variety of limb deformities, degenerative joint disease, and neurological disorders such as cerebral palsy. Thanks to our advanced diagnostic and therapeutic equipment, we are able to offer therapies tailored individually to each patient.

The Paley European Institute continues its mission to provide the highest quality medical care to Patients from all over Europe who need specialized treatment. We have proven time and again that we are a source of hope and ultimate salvation for Patients requiring the highest level of specialized care.